J. Wolfe, N. Klar, and H. Grier, Understanding of Prognosis Among Parents of Children Who Died of Cancer, JAMA, vol.284, issue.19, pp.2469-75, 2000.
DOI : 10.1001/jama.284.19.2469

J. Mack, J. Hilden, and J. Watterson, Parent and Physician Perspectives on Quality of Care at the End of Life in Children With Cancer, Journal of Clinical Oncology, vol.23, issue.36, pp.9155-61, 2005.
DOI : 10.1200/JCO.2005.04.010

M. Viallard, A. Suc, D. Broca, and A. , Practical modalities for terminal sedation in the pediatric population: Decision making, implementation and surveillance, Med Palliat, vol.9, pp.87-97, 2010.

P. Hubert, P. Canoui, and R. Cremer, Withholding or withdrawing life saving treatment in pediatric intensive care unit: GFRUP guidelines. Arch Pediatr, 2005.

M. De-vos, A. Van-der-heide, and H. Maurice-stam, The Process of End-of-Life Decision-Making in Pediatrics: A National Survey in the Netherlands, PEDIATRICS, vol.127, issue.4, 2011.
DOI : 10.1542/peds.2010-2591

L. Renfurm and A. Van-vught, Circumstances of dying in hospitalized children, 6. van der Wal ME, pp.1004-12560, 1999.

J. Wolfe, H. Grier, and N. Klar, Symptoms and Suffering at the End of Life in Children with Cancer, New England Journal of Medicine, vol.342, issue.5, pp.326-359, 2000.
DOI : 10.1056/NEJM200002033420506

A. Goldman, M. Hewitt, and G. Collins, Symptoms in Children/Young People With Progressive Malignant Disease: United Kingdom Children's Cancer Study Group/Paediatric Oncology Nurses Forum Survey, PEDIATRICS, vol.117, issue.6, pp.1179-86, 2006.
DOI : 10.1542/peds.2005-0683

J. Theunissen, P. Hoogerbrugge, and T. Van-achterberg, Symptoms in the palliative phase of children with cancer. Pediatr Blood Cancer, pp.160-65, 2007.

M. Pritchard, E. Burghen, and D. Srivastava, Cancer-related symptoms most concerning to parents during the last week and last day of their child's life. Pediatrics, pp.1301-1310, 2008.

L. Jalmsell, U. Kreicbergs, and E. Onelov, Symptoms Affecting Children With Malignancies During the Last Month of Life: A Nationwide Follow-up, PEDIATRICS, vol.117, issue.4, 2006.
DOI : 10.1542/peds.2005-1479

J. Heath, N. Clarke, and S. Donath, Symptoms and suffering at the end of life in children with cancer: an Australian perspective, Med J Aust, vol.192, issue.2, pp.71-75, 2010.

S. Cohen-gogo, G. Marioni, and S. Laurent, End of life care in adolescents and young adults with cancer: Experience of the adolescent unit of the Institut Gustave Roussy, European Journal of Cancer, vol.47, issue.18, pp.2735-2776, 2011.
DOI : 10.1016/j.ejca.2011.09.008

A. Petit, I. Aerts, and J. Lobut, Fin de vie en oncologie pédiatrique : une période active de traitement, Med Therap Pédiatr, vol.12, issue.3, pp.127-133, 2009.

B. Carter, M. Howenstein, and M. Gilmer, Circumstances Surrounding the Deaths of Hospitalized Children: Opportunities for Pediatric Palliative Care, PEDIATRICS, vol.114, issue.3, pp.361-66, 2004.
DOI : 10.1542/peds.2003-0654-F

V. Blanchet, Quelle conduite à tenir en phase terminale? Med Palliat, 2007.

A. Thioller and C. Wood, IMPaCCT : des recommandations pour les soins palliatifs pédiatriques en Europe. Médecine palliative -Soins de support - Accompagnement -Ethique, pp.277-283, 2008.

D. Oriot, R. Francophone-de-soins-palliatifs, and . Pédiatriques, Définition des soins palliatifs pédiatriques [en ligne] Disponible sur : http://www.pediatriepalliative.org/Definition-des-soins-palliatifs- pediatriques_a50.html

N. Humbert, Les soins palliatifs pédiatriques, p.680, 2004.

K. Widger, D. Davies, and D. Drouin, Pediatric Patients Receiving Palliative Care in Canada, Archives of Pediatrics & Adolescent Medicine, vol.161, issue.6, pp.597-602, 2007.
DOI : 10.1001/archpedi.161.6.597

V. Blanchet, Situations extrêmes, symptôme incontrôlable et place de la sédation. in: Soins palliatifs réflexions et pratique. Editions formation et développement. 3eme édition, 0222.

M. Viallard, A. Suc, D. Broca, and A. , Terminal sedation in children : Propositions gleaned from literature, Med Palliat, vol.9, pp.80-87, 2010.

V. Blanchet, R. Aubry, and M. Viallard, Sedation for distress in final stage : decision-making guidelines. Médecine palliative -Soins de support

K. Keesmann, Confusion between anxiolysis and sedation in terminal phase ?

M. Hewitt, A. Goldman, and G. Collins, Opioid Use in Palliative Care of Children and Young People with Cancer, The Journal of Pediatrics, vol.152, issue.1, pp.39-44, 2008.
DOI : 10.1016/j.jpeds.2007.07.005

D. Anghelescu and L. Oakes, Ketamine Use for Reduction of Opioid Tolerance in a 5-Year-Old Girl with End-Stage Abdominal Neuroblastoma, Journal of Pain and Symptom Management, vol.30, issue.1, pp.1-3, 2005.
DOI : 10.1016/j.jpainsymman.2005.05.007

D. Anghelescu, H. Hamilton, and L. Faughnan, Pediatric Palliative Sedation Therapy with Propofol: Recommendations Based on Experience in Children with Terminal Cancer, Journal of Palliative Medicine, vol.15, issue.10, pp.1082-90, 2012.
DOI : 10.1089/jpm.2011.0500

M. Duval and C. Wood, Treatment of non-painful symptoms in terminally ill children. Arch Pediatr, pp.1173-78, 2002.

M. Navez, C. Ricard, and J. Alibeu, Evaluation de la douleur de l'enfant et de l'adulte. Conférences d'actualisation, pp.335-355, 2003.

R. Carbajal, A. Paupe, and E. Hoenn, APN: evaluation behavioral scale of acute pain in newborn infants]. Arch Pediatr, pp.623-651, 1997.

T. Debillon, B. Sgaggero, and V. Zupan, Pain symptomatology in premature infants]. Arch Pediatr, pp.1085-92, 1994.

L. Broadman, L. Rice, and R. Hannallah, TESTING THE VALIDITY OF AN OBJECTIVE PAIN SCALE FOB INFANTS AND CHILDREN, Anesthesiology, vol.69, issue.Supplement, 1988.
DOI : 10.1097/00000542-198809010-00770

P. Collignon and B. Guisiano, Validation of a pain evaluation scale for patients with severe cerebral palsy, European Journal of Pain, vol.28, issue.4, pp.433-475, 2001.
DOI : 10.1053/eujp.2001.0265

P. Marec-bérard, F. Gomez, and S. Combet, HEDEN Pain Scale: A Shortened Behavioral Scale for Assessment of Prolonged Cancer or Postsurgical Pain in Children Aged 2 to 6 Years, Pediatric Hematology and Oncology, vol.84, issue.4, pp.1-13, 2015.
DOI : 10.1016/S0304-3959(03)00256-2

G. Infirmier and P. , La douleur de l'enfant : stratégies soignantes de prévention et de prise en charge [en ligne]. Disponible sur

E. Ista, M. Van-dijk, and D. Tibboel, Assessment of sedation levels in pediatric intensive care patients can be improved by using the COMFORT ???behavior??? scale*, Pediatric Critical Care Medicine, vol.6, issue.1
DOI : 10.1097/01.PCC.0000149318.40279.1A

C. Ho and L. Straatman, A Review of Pediatric Palliative Care Service Utilization in Children With a Progressive Neuromuscular Disease Who Died on a Palliative Care Program, Journal of Child Neurology, vol.350, issue.1, pp.40-44, 2013.
DOI : 10.1177/0883073812439345

C. Po, F. Benini, and L. Sainati, Procedural pain management in Italy: learning from a nationwide survery involving centers of the Italian Association of Pediatric Hematology-Oncology. Pediatr Rep, p.34, 2011.

V. Dardaine-giraud, M. Lamandé, and T. Constans, L'hypodermoclyse??: int??r??ts et indications en g??riatrie, La Revue de M??decine Interne, vol.26, issue.8, pp.643-50, 2005.
DOI : 10.1016/j.revmed.2005.03.016

L. Kuensting, Comparing Subcutaneous Fluid Infusion with Intravenous Fluid Infusion in Children, Journal of Emergency Nursing, vol.39, issue.1, pp.86-91
DOI : 10.1016/j.jen.2012.04.017

S. Morisson, P. Vassal, and B. Rochas, Drugs used subcutaneously in palliative care : review of the litterature and recommendations. Médecine palliative -Soins de support -Accompagnement -Ethique, Feb, vol.11, issue.1, pp.39-49, 2011.

P. Pouchoulin, E. Dugaret, and B. Burucoa, Subcutaneous route in palliative situation: between pratices and recommendations. A survey among French palliative care units in 2011. Médecine palliative -Soins de support -Accompagnement -Ethique, 2014.

M. Maltoni, E. Scarpi, and M. Rosati, Palliative Sedation in End-of-Life Care and Survival: A Systematic Review, Journal of Clinical Oncology, vol.30, issue.12, pp.1378-83, 2012.
DOI : 10.1200/JCO.2011.37.3795

A. Vrakking, A. Van-der-heide, and W. Arts, Medical End-of-Life Decisions for Children in the Netherlands, Archives of Pediatrics & Adolescent Medicine, vol.159, issue.9, pp.802-811, 2005.
DOI : 10.1001/archpedi.159.9.802

G. Pousset, J. Bilsen, and J. Cohen, Continuous Deep Sedation at the End of Life of Children in Flanders, Belgium, Journal of Pain and Symptom Management, vol.41, issue.2, pp.449-55, 2011.
DOI : 10.1016/j.jpainsymman.2010.04.025

W. Morrison and T. Kang, Judging the quality of mercy: drawing a line between palliation and euthanasia. Pediatrics. 2014 Feb, pp.31-37

C. Lervat, Apport du réseau régional d'oncologie pédiatrique d'Aquitaine RESILIAENCE sur les soins palliatifs : évaluation d'une journée d'échanges sur la prise en charge d'enfants en fin de vie sous la direction du Dr Notz A, 2010.

M. Schell and M. Castaing, Le soignant isolé en soins palliatifs pédiatriques