Épilepsies chez les adolescents à la Réunion, comparaison entre le vécu de l’adolescent et le ressenti de ses parents

Abstract : Introduction: epilepsy is one of the most common neurological chronic diseases, and is responsible for a significant impact in adolescent’s daily life in various domains : physical, psychological, social and in their quality of life (QoL). We study the QoL of adolescents with epilepsy from La Réunion, and compare adolescent’s report versus parent’s report. Methods : we conducted a prospective and observational study, distributing our questionnaire "Vécu de l’épilepsie chez l’adolescent" (Experiences from adolescent with epilepsy), adapted from the QOLIE-AD-48, during 6 month on the whole island. Eligibility criteria were: adolescent (11 to 18 years), with epilepsy (at least two seizures), in regular-education classes, without associated comorbidity. There was one adolescent’s survey and one parent’s. Score was a 0-100 scale. Results : we collected 48 adolescent’s questionnaires, 22 from girls and 26 from boys, with a mean age of 14 years (SD=2), and 46 parent’s questionnaire. The mean global score of parents is 60,9 (SD=14,3) and adolescent’s score is 65,8 (SD =12,9). The mean of the difference between the two scores is - 4,8 [IC= -8,3 ; - 1,3]. For the subscale “Impact des crises” (seizures’ impact), the mean of the difference between the two scores is -14,8 [IC= -25,6 ; -3,9]. Adolescents’ global scores are better from adolescents without antiepileptic drug (p=0,03), and trend to be worse according to the seizure frequency (p=0,08). Girls trend to have 120 better scores (p=0,09). There is no significant difference according to the age, and the type of school (regular/special). Furthermore 56,5% of adolescents have learning disabilities, 1/3 practices an extracurricular activity, and 2/3 use to sleep outside the family home. Conclusions : according to our study, adolescents with epilepsy report higher QoL scores compared to their parents.
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Augustin Rousselle. Épilepsies chez les adolescents à la Réunion, comparaison entre le vécu de l’adolescent et le ressenti de ses parents. Médecine humaine et pathologie. 2016. ⟨dumas-01563948⟩

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