Séquence de Pierre Robin : vécu, attentes des parents et connaissances des sages-femmes

Abstract : Introduction: In utero orality is the very first motor sequence to be set up within the human foetus. The suction and swallowing reflex is the first one to appear, at around 12 weeks of amenorrhoea. Nevertheless, congenital defects and pathologies exist; preventing a partial or complete set up of this function and resulting in suction and swallowing disorders. It is the case of the newborn suffering of the Pierre Robin sequence. The midwife is the one in the best position to detect, comfort and guide the parents having a newborn baby suffering of suction and swallowing disorders. Equipment and method: Two studies had to be done in order to achieve our goals: - a qualitative study relying on semi-directive interviews with parents having a child suffering of the Pierre Robin sequence allowing to know their expectations and their experience concerning their child’s treatment. - a descriptive and retrospective quantitative study carried out with questionnaires addressed to midwives allowing to weigh midwives’ knowledge bout PRS and suction and swallowing disorders. Results: The study led on the parents highlights a negative experience for the most part. The parents also highlighted a lack of knowledge from the healthcare professionals regarding the suction and swallowing disorders. The study led on the midwives reveals that they are in demand of trainings concerning the suction and swallowing disorders as these happen frequently. Conclusion: Although these two studies have been done on small samples, they reveal the parents had an overall negative experience, highlighting the lack of knowledge from the healthcare professionals regarding this pathology. The latter supports the results we got with the study led on the midwives.
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Sophie Sauvaire-Jourdan. Séquence de Pierre Robin : vécu, attentes des parents et connaissances des sages-femmes. Gynécologie et obstétrique. 2018. ⟨dumas-01957789⟩



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