, Vaincre -Le magazine de l'association vaincre la mucoviscidose, Disponible sur, 2018.
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Kinésithérapie respiratoire. 3e édition, vol.424, 2014. ,
Epidemiology of Cystic Fibrosis, Clin Chest Med. mars, vol.37, issue.1, pp.1-8, 2016. ,
Programme national de dépistage néonatal de la mucoviscidose : mise en place et résultats préliminaires, vol.32, p.5, 2019. ,
Registre français de la mucoviscidose -Bilan des données 2006. Vaincre la mucoviscidose, INED, 2009. ,
Manifestations digestives de la mucoviscidose de l'adulte, Gastroentérologie Clinique et Biologique. déc, vol.29, issue.12, pp.1279-85, 2005. ,
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Outcome of cystic fibrosis-associated liver cirrhosis: management of portal hypertension, J Hepatol. juill, vol.31, issue.1, pp.77-83, 1999. ,
Atteinte respiratoire de la mucoviscidose de l'enfance à l'âge adulte, Archives de Pédiatrie. mai, vol.19, pp.17-26, 2012. ,
Prise en charge des complications aiguës sévères chez l'adulte mucoviscidosique, Revue des Maladies Respiratoires. avr, vol.28, issue.4, pp.503-519, 2011. ,
Nasal and sinus disease in cystic fibrosis, Paediatr Respir Rev. sept, vol.9, issue.3, pp.213-222, 2008. ,
Nasal and paranasal disease in adult cystic fibrosis patients, Eur Respir J. 1 nov, vol.5, issue.10, pp.1239-1281, 1992. ,
Les manifestations rhumatologiques de la mucoviscidose, Revue du Rhumatisme, vol.70, issue.9, pp.703-715, 2003. ,
Bone mass and vitamin D deficiency in adults with advanced cystic fibrosis lung disease, Am J Respir Crit Care Med. juin, vol.157, issue.6, pp.1892-1901, 1998. ,
Mucoviscidose de l'adulte, EMC -Pneumologie. janv, vol.5, issue.3, pp.1-11, 2008. ,
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Évolutions de la mucoviscidose : des enjeux importants pour la pneumologie ! Revue des, Maladies Respiratoires. déc, vol.7, issue.5, pp.565-571, 2015. ,
Le ministre délégué à la santé ,
Centres de ressources et de compétence de la mucoviscidose et réseaux de soins : le rôle des différents acteurs, Archives de Pédiatrie. juin, vol.12, issue.6, pp.654-661, 2005. ,
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Transition programs in cystic fibrosis centers: Perceptions of patients, Pediatr Pulmonol. 1 mai, vol.33, issue.5, pp.327-358, 2002. ,
La transition dans la mucoviscidose : expérience de 10 ans d'une procédure formalisée pour 97 patients, La Revue de Médecine Interne. juin, vol.39, pp.106-113, 2018. ,
Chest physiotherapy compared to no chest physiotherapy for cystic fibrosis. Cochrane Database Syst Rev, p.1401, 2013. ,
Musculoskeletal involvement in cystic fibrosis, Bull Hosp Jt Dis N Y N, vol.58, issue.1, pp.37-44, 1999. ,
Physical exercise training for cystic fibrosis ,
, , 2015.
Impact de l'exercice physique chez les patients atteints de mucoviscidose : revue systématique, Rev Mal Respir. sept, vol.33, issue.7, pp.573-82, 2016. ,
Factors that influence adherence to exercise and their effectiveness: Application to cystic fibrosis, Pediatr Pulmonol. 1 juill, vol.34, issue.1, pp.66-72, 2002. ,
Sex differences in habitual physical activity and lung function decline in children with cystic fibrosis, J Pediatr. sept, vol.147, issue.3, pp.321-327, 2005. ,
Comparing accelerometer, pedometer and a questionnaire for measuring physical activity in bronchiectasis: a validity and feasibility study, Respir Res. déc, vol.18, issue.1, p.16, 2017. ,
Physical activity is the strongest predictor of all-cause mortality in patients with COPD: a prospective cohort study, Chest. août, vol.140, issue.2, pp.331-373, 2011. ,
Pilot study of a cell phonebased exercise persistence intervention post-rehabilitation for COPD, Int J Chron Obstruct Pulmon Dis, vol.4, pp.301-314, 2009. ,
The effects of a lifestyle physical activity counseling program with feedback of a pedometer during pulmonary rehabilitation in patients with COPD: a pilot study, Patient Educ Couns. avr, vol.61, issue.1, pp.48-55, 2006. ,
A pilot study of an Internet walking program and pedometer in COPD, Respir Med. sept, vol.106, issue.9, pp.1342-50, 2012. ,
Feasibility and Acceptability of an Internet-Based Program to Promote Physical Activity in Adults With Cystic Fibrosis, Respir Care. 1 mars, vol.60, issue.3, pp.422-431, 2015. ,
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Chapitre 4. L'entretien de recherche, Management des ressources humaines ,
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L'entretien semi-directif : à la frontière de la santé publique et de l'anthropologie, Rech Soins Infirm, issue.102, pp.23-34, 2010. ,
Enquête : entretien et questionnaire -3e édition ,
Le questionnaire -4e édition. 4e édition. Paris: Armand Colin, vol.128, 2016. ,
Mucoviscidose : du bon usage des explorations fonctionnelles respiratoires, Revue des Maladies Respiratoires. juin, vol.24, issue.6, pp.691-701, 2007. ,
Prediction of mortality in patients with cystic fibrosis, N Engl J Med. 30 avr, vol.326, issue.18, pp.1187-91, 1992. ,
Détermination de l'activité physique par questionnaire: validation du questionnaire autoadministrable de Baecke, Sci Sports. 1 janv, vol.7, issue.4, pp.215-236, 1992. ,
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mHealth Technologies to Influence Physical Activity and Sedentary Behaviors: Behavior Change Techniques, Systematic Review and Meta-Analysis of Randomized Controlled Trials, Ann Behav Med Publ Soc Behav Med. avr, vol.51, issue.2, pp.226-265, 2017. ,
Design, development, and formative evaluation of a smartphone application for recording and monitoring physical activity levels: the 10,000 Steps « iStepLog, avr, vol.40, issue.2, pp.140-51, 2013. ,
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Telehealth in cystic fibrosis: a systematic review, J Telemed Telecare. mars, vol.18, issue.2, pp.72-80, 2012. ,
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, Institut national de la statistique et des études économiques. Insee, Tableaux de l'économie française, p.2017, 2017.
Physical activity participation by adults with cystic fibrosis: An observational study: Physical activity in adults with CF, Respirology. avr, vol.21, issue.3, pp.511-519, 2016. ,
Diffusion of Technology: Frequency of Use for Younger and Older Adults, Ageing Int. mars, vol.36, issue.1, pp.123-168, 2011. ,
Understanding gender differences in mhealth adoption: a modified theory of reasoned action model, Telemed J E-Health Off J Am Telemed Assoc. janv, vol.20, issue.1, pp.39-46, 2014. ,
Gender differences in gratifications from fitness app use and implications for health interventions, Mob Media Commun. 1 mai, vol.5, issue.2, pp.178-93, 2017. ,
Designing home telecare: a case study in monitoring cystic fibrosis, Telemed J E-Health Off J Am Telemed Assoc. déc, vol.11, issue.6, pp.707-726, 2005. ,
The Adaptive Aerosol Delivery system in a telehealth setting: patient acceptance, performance and feasibility, J Aerosol Med Pulm Drug Deliv. avr, vol.23, issue.1, pp.21-27, 2010. ,
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, Nombre d'applications du Google Play Store 2017 | Statistique
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Understanding the costs of care for cystic fibrosis: an analysis by age and health state, Value Health J Int Soc Pharmacoeconomics Outcomes Res. avr, vol.16, issue.2, pp.345-55, 2013. ,
Social/economic costs and health-related quality of life in patients with cystic fibrosis in Europe, Eur J Health Econ HEPAC Health Econ Prev Care. avr, vol.17, issue.1, pp.7-18, 2016. ,
, Q9* : Pratiquez-vous du sport ? Si oui, ? Quel sport pratiquez-vous le plus fréquemment ? ** Faible
, Pratiquez-vous un second sport ? Si oui
, ? De quel sport s'agit-il ? ** Faible intensité (0.76) Intensité modéré (1.26) ou forte intensité, p.76
, Q10 : En comparaison avec les autres personnes de votre âge, vous pensez que votre activité physique durant vos loisirs est : « beaucoup plus importante
, « plus importante
,
, « moins importante
, « beaucoup moins importante » (1pts)
, Q11 : Pendant vos loisirs vous transpirez : « jamais
,
,
,
, « très souvent » (5pts)
, Q12 : Pendant vos loisirs
,
,
,
, « très souvent » (5pts)