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, Notice d'information adolescent NOTICE D'INFORMATION DES ADOLESCENTS DE 11 A 17 ANS

E. De-gastrostomie, L. Bonjour, ;. Docteur, and . De-gastrostomie-»,

, Vous avez eu la pose d'une gastrostomie, orifice permettant d'administrer la nourriture directement dans l'estomac

, Les médecins ont mis en place cette étude pour vérifier votre qualité de vie et votre état de santé depuis la mise en place

, L'objectif général de cette étude est de documenter la qualité de vie des enfants et des parents après la pose d'une gastrostomie par voie percutanée

, L'étude est proposée à tous les enfants et adolescents ayant eu la même chose entre, 2014.

. Déroulement-de-l'étude,

, Si vous participez à cette recherche avec un aidant (un de vos parents ou titulaires de l'autorité parentale), il faudra que vous remplissiez un livret avec des questionnaires

, Ces questions seront sur votre vie quotidienne, votre école, vos repas, votre situation familiale, les complications et les données relatives à ton état nutritionnel depuis la pose? Il y aura un questionnaire de qualité de vie pour votre aidant et un pour vous

, Des informations médicales seront également recueillies depuis votre dossier informatisé de façon anonyme

, Quelles sont les contraintes et désagréments ? Il faut souligner que la participation à cette recherche ne change rien à votre suivi médical

, Il s'agit pour les chercheurs d'utiliser les informations qui vous concernent dans un but scientifique, afin de mieux connaitre les répercussions de cet événement sur votre quotidien et celui de vos aidants

, Il existe seulement des contraintes : la contrainte majeure concernant cette étude sera que vous accordiez un peu de temps pour remplir les questionnaires