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Master Thesis

Prise en charge de la séquence de Pierre Robin à l’hôpital de la Timone : le point de vue des parents

Abstract : Background: The Pierre Robin sequence is a rare syndrome, the affected children born in the PACA region are monitored and treated at the reference center of the Timone Hospital in Marseille. This pathology has multiple consequences for the affected child and his entourage, since the treatment involves heavy therapies and a regular multidisciplinary follow-up. Objectives: The purpose of this study is to identify the criteria for acceptability of therapy and to collect data on the parental experience of caring for their affected children. Study design: Quantitative, descriptive and retrospective study using questionnaire designed for parents of children born between 2013 and 2018 with a medical follow-up for a Pierre Robin sequence at the Timone hospital in the pediatric maxillofacial surgery department. Results: The criteria of acceptability of the therapy highlighted are the comfort of the child, the limitation of the use of the surgery, the limitation of the duration of the treatment. Parents have many questions and need to receive a lot of information and support throughout the care of their children. Conclusion: This study resulted in better knowledge to better meet the expectations and needs of parents, and to consider an evolution in the proposed therapies.
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https://dumas.ccsd.cnrs.fr/dumas-02382969
Contributor : École Universitaire de Maïeutique Marseille Méditerranée (eu3m) <>
Submitted on : Wednesday, November 27, 2019 - 2:42:53 PM
Last modification on : Monday, July 6, 2020 - 4:04:38 PM

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  • HAL Id : dumas-02382969, version 1

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Kélyane Rohart. Prise en charge de la séquence de Pierre Robin à l’hôpital de la Timone : le point de vue des parents. Gynécologie et obstétrique. 2019. ⟨dumas-02382969⟩

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