, liée à la réticence de certains médecins de leur proposer l'étude. Les difficultés à aborder le sujet des soins palliatifs avec certaines familles y ont participé de façon non négligeable
, ans étaient rempli par les parents et ne reflétaient donc pas entièrement le ressenti des enfants, contrairement aux autres tranches d'âge témoignant ainsi des difficultés des mesures auto-rapportées au sein de cette population
, Concernant l'échelle de symptômes utilisée, il n'y avait pas de validation en français mais nous l'avons traduite à partir de la version anglaise
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