. Encyclopédie-de-diderot--gastrotomie,

M. E. Mcsweeney and C. J. Smithers, Advances in Pediatric Gastrostomy Placement, Gastrointestinal Endoscopy Clinics of North America, vol.26, issue.1, pp.169-185, 2016.

J. P. Sulkowski, A. C. De-roo, and J. Nielsen, A comparison of pediatric gastrostomy tube placement techniques, Pediatric Surgery International, vol.32, issue.3, pp.269-275, 2016.

J. Bravo, E. Ide, and A. Kondo, Percutaneous endoscopic versus surgical gastrostomy in patients with benign and malignant diseases: a systematic review and meta-analysis, Clinics, vol.71, issue.3, pp.169-178, 2016.

A. A. Rahnemai-azar, A. A. Rahnemaiazar, R. Naghshizadian, A. Kurtz, and D. T. Farkas, Percutaneous endoscopic gastrostomy: Indications, technique, complications and management, World Journal of Gastroenterology, vol.20, issue.24, pp.7739-7751, 2014.

J. Crosby and D. Duerksen, A Retrospective Survey of Tube-Related Complications in Patients Receiving Long-Term Home Enteral Nutrition. Digestive Diseases and Sciences, vol.50, pp.1712-1717, 2005.

H. Pars and H. Çavu?o?lu, A Literature Review of Percutaneous Endoscopic Gastrostomy: Dealing With Complications, Gastroenterology Nursing, p.1, 2017.

D. S. Corwin, J. S. Isaacs, K. E. Georgeson, A. A. Bartolucci, H. H. Cloud et al., Weight and length increases in children after gastrostomy placement, J Am Diet Assoc, vol.96, issue.9, pp.874-879, 1996.

K. E. Nelson, A. Lacombe-duncan, and E. Cohen, Family Experiences With Feeding Tubes in Neurologic Impairment: A Systematic Review, PEDIATRICS, vol.136, issue.1, pp.140-151, 2015.

J. Pemberton, C. Frankfurter, K. Bailey, L. Jones, and J. M. Walton, Gastrostomy matters-The impact of pediatric surgery on caregiver quality of life, Journal of Pediatric Surgery, vol.48, issue.5, pp.963-970, 2013.

T. L. Åvitsland, K. Birketvedt, K. Bjørnland, and R. Emblem, Parent-Reported Effects of Gastrostomy Tube Placement, Nutrition in Clinical Practice, vol.28, issue.4, pp.493-498, 2013.

M. B. Heyman, P. Harmatz, and M. Acree, Economic and psychologic costs for maternal caregivers of gastrostomy-dependent children, The Journal of Pediatrics, vol.145, issue.4, pp.511-516, 2004.

G. M. Craig and G. Scambler, Negotiating mothering against the odds: Gastrostomy tube feeding, stigma, governmentality and disabled children, Social Science & Medicine, vol.62, issue.5, pp.1115-1125, 2006.

G. M. Craig, G. Scambler, and L. Spitz, Why parents of children with neurodevelopmental disabilities requiring gastrostomy feeding need more support, Developmental Medicine & Child Neurology, vol.45, issue.3, pp.183-188, 2003.

D. N. Guerriere, P. Mckeever, H. Phd, and G. Berall, Mothers' decisions about gastrostomy tube insertion in children: factors contributing to uncertainty, Developmental Medicine & Child Neurology, vol.45, issue.7, pp.470-476, 2003.

M. C. Petersen, S. Kedia, P. Davis, L. Newman, and C. Temple, Eating and feeding are not the same: caregivers' perceptions of gastrostomy feeding for children with cerebral palsy, Dev Med Child Neurol, vol.48, issue.9, pp.713-717, 2006.

P. B. Sullivan, E. Juszczak, and A. M. Bachlet, Impact of gastrostomy tube feeding on the quality of life of carers of children with cerebral palsy, Developmental Medicine & Child Neurology, vol.46, issue.12, pp.796-800, 2004.

C. Martínez-costa, C. Calderón, L. Gómez-lópez, S. Borraz, and C. Pedrón-giner, Satisfaction with gastrostomy feeding in caregivers of children with home enteral nutrition; application of the SAGA-8 questionnaire and analysis of involved factors, Nutr Hosp, vol.28, issue.4, pp.1121-1128, 2013.

C. M. Callahan, K. M. Haag, N. N. Buchanan, and R. Nisi, Decision-Making for Percutaneous Endoscopic Gastrostomy Among Older Adults in a Community Setting, Journal of the American Geriatrics Society, vol.47, issue.9, pp.1105-1109, 1999.

M. Holst and H. H. Rasmussen, Nutrition Therapy in the Transition between Hospital and Home: An Investigation of Barriers, J Nutr Metab, 2013.

M. Wilson, J. Gosche, P. Bishop, H. Liu, T. Moore et al., Critical analysis of caregiver perceptions regarding gastrostomy tube placement, Pediatrics International, vol.52, issue.1, pp.20-25, 2010.

R. Sumritsopak, S. Treepongkaruna, N. Butsriphum, and P. Tanpowpong, Percutaneous Endoscopic Gastrostomy in Children: Caregivers' Perspectives, Journal of Pediatric Nursing, vol.30, issue.4, pp.3-7, 2015.

C. Martínez-costa, S. Borraz, C. Benlloch, A. López-sáiz, V. Sanchiz et al., Early decision of gastrostomy tube insertion in children with severe developmental disability: a current dilemma, Journal of Human Nutrition and Dietetics, vol.24, issue.2, pp.115-121, 2011.

A. M. Brotherton, J. Abbott, and P. J. Aggett, The impact of percutaneous endoscopic gastrostomy feeding in children; the parental perspective. Child: Care, Health and Development, vol.33, pp.539-546, 2007.

A. Brotherton, J. Abbott, M. Hurley, and P. J. Aggett, Home enteral tube feeding in children following percutaneous endoscopic gastrostomy: perceptions of parents, paediatric dietitians and paediatric nurses, Journal of Human Nutrition and Dietetics, vol.20, issue.5, pp.431-439, 2007.

M. Schweitzer, J. Aucoin, S. L. Docherty, H. E. Rice, J. Thompson et al., Evaluation of a Discharge Education Protocol for Pediatric Patients With Gastrostomy Tubes, Journal of Pediatric Health Care, vol.28, issue.5, pp.420-428, 2014.

W. Sevilla and B. Mcelhanon, Optimizing Transition to Home Enteral Nutrition for Pediatric Patients, Nutrition in Clinical Practice, vol.31, issue.6, pp.762-768, 2016.

S. Klek, A. Hermanowicz, and G. Dziwiszek, Home enteral nutrition reduces complications, length of stay, and health care costs: results from a multicenter study, Am J Clin Nutr, vol.100, issue.2, pp.609-615, 2014.

S. Dinenage, M. Gower, and J. Van-wyk, Development and Evaluation of a Home Enteral Nutrition Team, Nutrients, vol.7, issue.3, pp.1607-1617, 2015.

C. Martínez-costa, C. Calderón, C. Pedrón-giner, S. Borraz, and L. Gómez-lópez, Psychometric properties of the structured Satisfaction Questionnaire with Gastrostomy Feeding (SAGA-8) for caregivers of children with gastrostomy tube nutritional support, Journal of Human Nutrition and Dietetics, vol.26, issue.2, pp.191-197, 2013.

E. André, I. Hodgkinson, C. Bérard, and V. Des-portes, Qualité de vie de l'enfant polyhandicapé: questionnaire portant sur l'influence de l'état de santé et de l'alimentation entérale. Archives de Pédiatrie, vol.14, pp.1076-1083, 2007.

K. Spalding and P. Mckeever, Mothers' experiences caring for children with disabilities who require a gastrostomy tube, Journal of Pediatric Nursing, vol.13, issue.4, pp.234-243, 1998.

M. Russell, V. Jewell, G. A. Poskey, and A. Russell, Enteral feeding and its impact on family mealtime routines for caregivers of children with cerebral palsy: A mixed method study, Australian Occupational Therapy Journal, vol.65, issue.1, pp.25-34, 2018.

S. Mahant, V. Jovcevska, and E. Cohen, Decision-Making Around Gastrostomy-Feeding in Children With Neurologic Disabilities, PEDIATRICS, vol.127, issue.6, pp.1471-1481, 2011.

. Serment-d'hippocrate,

, Au moment d'être admise à exercer la médecine, je promets et je jure d'être fidèle aux lois de l'honneur et de la probité

, Mon premier souci sera de rétablir, de préserver ou de promouvoir la santé dans tous ses éléments, physiques et mentaux, individuels et sociaux

, Je respecterai toutes les personnes, leur autonomie et leur volonté, sans aucune discrimination selon leur état ou leurs convictions. J'interviendrai pour les protéger si elles sont affaiblies, vulnérables ou menacées dans leur intégrité ou leur dignité. Même sous la contrainte

, Je ne tromperai jamais leur confiance et n'exploiterai pas le pouvoir hérité des circonstances pour forcer les consciences

, Je ne me laisserai pas influencer par la soif du gain ou la recherche de la gloire

, Admise dans l'intimité des personnes, je tairai les secrets qui me seront confiés. Reçue à l'intérieur des maisons, je respecterai les secrets des foyers et ma conduite ne servira pas à corrompre les moeurs

, Je ne prolongerai pas abusivement les agonies. Je ne provoquerai jamais la mort délibérément

, Je n'entreprendrai rien qui dépasse mes compétences. Je les entretiendrai et les perfectionnerai pour assurer au mieux les services qui me seront demandés

, J'apporterai mon aide à mes confrères ainsi qu'à leurs familles dans l'adversité

, Que les hommes et mes confrères m'accordent leur estime si je suis fidèle à mes promesses

, que je sois déshonorée et méprisée si j'y manque