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Master Thesis

Identification des axes de recherche prioritaires en soins palliatifs par les patients, aidants et soignants : élaboration du protocole de l'étude AXEPRO

Abstract : In research, there is a gap between the expectations of patients and researchers. The objective of this work is to develop the protocol for the AXEPRO study, the aim of which is the determination and prioritization of ten research axes in the field of palliative care according to patients, carers and clinicians. The protocol was inspired by the English study Palliative and end of life care Priority Setting Partnership which uses the James Lind Alliance methodology, which was adaptated to make it feasible in France. The protocol was written using the three main stages of the English study and the two questionnaires. The first questionnaire was the subject of a pre-test study. AXEPRO is similar to a mixed multi-stage sequential study. It includes a first step which consists of a survey of the target population to collect research questions in palliative care which they consider to be priority. A long list of questions is obtained after a reformulation step and a review of the literature. The second step, called initial prioritization, makes it possible to prioritize these questions during a second survey of the same population. Finally, the last step known as final prioritization leads consensus on a list of ten research axes, during a nominal group. Although innovative, the writing of the protocol encountered some difficulties and has its limits. However, it raises an interesting question about the place of patients and carers in medical research.
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Master Thesis
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https://dumas.ccsd.cnrs.fr/dumas-02473967
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Submitted on : Monday, February 17, 2020 - 12:03:56 PM
Last modification on : Monday, September 21, 2020 - 5:26:16 PM
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Doan Phuong Huynh, Roseline Huynh. Identification des axes de recherche prioritaires en soins palliatifs par les patients, aidants et soignants : élaboration du protocole de l'étude AXEPRO. Médecine humaine et pathologie. 2020. ⟨dumas-02473967⟩

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