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Master Thesis

Enfants porteurs de fente faciale de 0 à 6 ans : quelles informations et conseils donner aux parents dans le cadre du suivi pluridisciplinaire aux Hôpitaux Pédiatriques de Nice CHU-Lenval ?

Abstract : Parents of children born with a facial cleft need information throughout the multidisciplinary follow-up to become actors in the care. Faced with the multiplicity of health professionals encountered and the medical specificity of the information provided, parents may not feel informed well enough. The aim of our study was to measure parents' feelings about the information received during the multidisciplinary follow-up of their child at the Nice-CHU Lenval Paediatric Hospitals and to check whether the information booklet we created could improve their satisfaction. We therefore circulated an identical questionnaire before and after the sharing of this booklet. Our results showed that the initial satisfaction of the parents was already very high in all the fields studied (surgery, ENT, speech therapy and orthodontics), and that it had further increased with the booklet. Given the high initial level of satisfaction, this positive evolution is only rarely significant (p< 0.05 for 3 out of 15 questions). The area where satisfaction increased the most, and significantly with the booklet, was orthodontics. These findings are interesting for the multidisciplinary teams, as they confirm that a written support can globally enrich the oral information received during the annual or semi-annual follow-ups and thus improve parents' satisfaction.
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Master Thesis
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https://dumas.ccsd.cnrs.fr/dumas-02939642
Contributor : Bibliothèque Universitaire de Médecine Nice <>
Submitted on : Tuesday, September 15, 2020 - 5:05:51 PM
Last modification on : Thursday, January 21, 2021 - 3:11:23 AM

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  • HAL Id : dumas-02939642, version 1

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Héloïse Castel. Enfants porteurs de fente faciale de 0 à 6 ans : quelles informations et conseils donner aux parents dans le cadre du suivi pluridisciplinaire aux Hôpitaux Pédiatriques de Nice CHU-Lenval ?. Médecine humaine et pathologie. 2020. ⟨dumas-02939642⟩

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