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Master Thesis

Mieux comprendre les difficultés des aidants de malades à corps de Lewy pour mieux les accompagner

Abstract : Lewy body disease (LBD) affects approximately 150 000 people in France. It is the second most common neurodegenerative disorder affecting patients after Alzheimer's disease. The main aim of this this study was to define the experiences of the caregivers of people with LBD, by answering two key questions : how do caregivers experience support, according to their particular pathway ? What are the obstacles and levers to efficient support ? 21 caregivers of patients with LBD were interviewed using the focus group method (Skillman et al., 2019). The questions concerned the evolution of the caregiving relationship, the associated milestones, and the caregivers ways of adapting to the reshuffling involved in the caregiving relationship. The results obtained highlighted the key moments in the helping relationship (fluctuations in symptoms, progressive loss of fundamental and instrumental activities, etc.), the factors attributed to moments of balance (sharing of activities, functional aids, etc.) and the factors attributed to moments of rupture (communication problems, anxiety of the patient, etc.). Also, they highlight the external adaptive resources (family support, friends, support from the medical profession, etc.) and the internal adaptive resources (development of new capacities, anticipated mourning, etc.) of caregivers. These results make it possible to propose a dynamic model of the support of LBD by caregivers.
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Master Thesis
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Submitted on : Tuesday, August 3, 2021 - 9:19:29 PM
Last modification on : Thursday, August 5, 2021 - 3:21:47 AM
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Alexis Rovelli - Mieux compren...
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  • HAL Id : dumas-03313385, version 1



Alexis Rovelli. Mieux comprendre les difficultés des aidants de malades à corps de Lewy pour mieux les accompagner. Psychologie. 2021. ⟨dumas-03313385⟩



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