HAL will be down for maintenance from Friday, June 10 at 4pm through Monday, June 13 at 9am. More information
Skip to Main content Skip to Navigation
Master Thesis

Participation des parents à la sédation en situation palliative de leur enfant : une amélioration de la prise en charge ? Point de vue des professionnels

Abstract : Background: proportionate sedation in pediatric palliative care is indicated to treat a refractory symptom experienced as unbearable. Sedation with midazolam by PCA pump is increasingly developed allowing symptom management by the child, and also by a caregiver or a parent. Parents are gradually being integrated into palliative care in an active and early way. But does the participation of parents in the sedation of their child allow an improvement of the management according to the professionals? Method: this is a prospective multicenter qualitative study. Nine semi-structured interviews were conducted with health professionals, nurses and physicians from different pediatric departments. Results: the participation of parents in the sedation of their child is part of a certain temporality requiring preparation and anticipation with the parents. This participation takes into account the singularity of each parent, of the child, and of the triangular relationship specific to pediatrics. The primary intention is to help limit the suffering of the child, but also that of the parents, with the idea of a serene death, taking into account the risk of guilt and confusion with the desire to accelerate the end of life. Discussion: through the participation of the parents, we question their place in the care and the concept of "good death". The subjectivity of caregivers and the possible confusion between sedation and euthanasia may have a role in the way parents' participation is conceived. Conclusion: parental participation in sedation can, in certain circumstances, improve the care of their child. Parents are actors in the relief of their child, reinforcing the bond of trust with the caregivers. Doing so on a case-by-case basis would avoid any feelings of guilt.
Document type :
Master Thesis
Complete list of metadata

https://dumas.ccsd.cnrs.fr/dumas-03525961
Contributor : Bu Sciences Upd5 Connect in order to contact the contributor
Submitted on : Friday, January 14, 2022 - 11:01:09 AM
Last modification on : Thursday, April 7, 2022 - 2:28:02 PM
Long-term archiving on: : Friday, April 15, 2022 - 6:31:24 PM

File

M2Ethique_BECUWE_Emma_DUMAS.pd...
Files produced by the author(s)

Licence


Distributed under a Creative Commons Attribution - NonCommercial - NoDerivatives 4.0 International License

Identifiers

  • HAL Id : dumas-03525961, version 1

Citation

Emma Becuwe. Participation des parents à la sédation en situation palliative de leur enfant : une amélioration de la prise en charge ? Point de vue des professionnels. Ethique. 2021. ⟨dumas-03525961⟩

Share

Metrics

Record views

38

Files downloads

8