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Master Thesis

Qualité de vie des familles d’enfants trachéotomisés au CHU de Bordeaux : cohorte rétrospective de 2000 à 2020

Abstract : Introduction: the indications for tracheostomy in pediatrics and their number have evolved and increased since the 1990s in developed countries. The placement of a tracheostomy raises questions about the quality of life of these children and their families. The main objective of this retrospective descriptive and analytical study was to evaluate the quality of life of families of tracheostomized children in Bordeaux and the secondary objective was to analyze the epidemiological characteristics of this population. Materials and methods: the epidemiological characteristics of tracheostomized children followed in Bordeaux from 2000 to 2020 were studied. The life experience was studied in the families of living patients with an extended tracheostomy using a modified and translated version of the "Pediatric Tracheostomy Health Status Instrument", a quality-of- life questionnaire by Dr. Christopher Hartnick ORL pediatrics. Results: our population included 81 tracheostomized children. Thirty-eight families received the questionnaire and 17 responded (44.7%). No parents rated their quality of life as excellent. They described feelings of insecurity during care, concerns for their child's emotional well-being and physical health. Tracheostomy had an impact on the parents' health status, affecting their emotional well-being, sleep, and work. Forty percent of parents described inadequate psychological support. Eighty percent of parents reduced or adjusted their work activity. Training in tracheostomy care was well rated by parents and provided a sense of security. The children had little schooling. Conclusion: tracheostomy in pediatrics induces a complex care pathway and an alteration of the family quality of life. Better support and training of caregivers would improve their life experience.
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https://dumas.ccsd.cnrs.fr/dumas-03599449
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Submitted on : Monday, March 7, 2022 - 10:36:09 AM
Last modification on : Tuesday, March 8, 2022 - 3:28:55 AM

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Audrey Cougot. Qualité de vie des familles d’enfants trachéotomisés au CHU de Bordeaux : cohorte rétrospective de 2000 à 2020. Sciences du Vivant [q-bio]. 2021. ⟨dumas-03599449⟩

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