Évaluation rétrospective de l'effet des interventions effectuées par l'unité mobile d'autisme adulte "les Makaras" auprès de patients souffrant d'un trouble du spectre autistique avec une déficience intellectuelle associée et présentant des troubles du comportement

Abstract : The mobile team « Les Makaras » aims at diagnosing Autistic Spectrum Disorder (ASD), in order to help to improve the treatment of behavioral disorders (BD). Our main objective in this retrospective study is to consider the influence with the families and the medical staff of interventions aiming at a diagnostic assessment and a treatment of BD. Besides, we have dealt with the quality of life of the families and close families as well as the quality of life of the medical staff and the degree of exhaustion entailed by their profession. We have been granted the approval of the Ethical Board. We have dealt with 28 adult patients with (ASD) associate with a moderate to severe intellectual disability as well as behavioral disorders, these patients being either tended in adults place of residence, day residence, or hospitalized in PACA region centers. The intervention took place between January 1st 2017 and January 1st 2018. The data collection was based on 2 questionnaires: staff and legally accountable person. The main criterion of the evaluation was mixed: Likert scales, global clinical impressions and ASD-BPA evaluation scale. Diagnosing ASD enabled 80,7% of the families and 79,2% of the staff to have a better understanding of the patients; 65,5% of the families and 83,4% of the staff to have a better follow-up of the patients; the link between staff and family was also improved. Besides, 53,9% of the close families and 50% of the staff noticed that their quality of life was improved. The most frequent result of the CGI was a minimal therapeutic effect without any occurrence of undesirable effects. According to the parents the decrease of the global score of the ASD-BPA was statistically significant (p=0.0004 and IC: [0.69; 2.15]); as to the staff the decrease was also considered as statistically significant (p=0.020 and IC: [0.16; 1.74]). As a conclusion: the diagnostic of adult ASD by this mobile unit has a benefic effect on all persons concerned and authorizes a decrease of problem behaviors.
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Submitted on : Tuesday, January 8, 2019 - 3:10:47 PM
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Stéphanie Locatelli. Évaluation rétrospective de l'effet des interventions effectuées par l'unité mobile d'autisme adulte "les Makaras" auprès de patients souffrant d'un trouble du spectre autistique avec une déficience intellectuelle associée et présentant des troubles du comportement. Sciences du Vivant [q-bio]. 2018. ⟨dumas-01973941⟩

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