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Master Thesis

Vécu et représentations de la maladie des patients pensant être atteints de la maladie de Lyme

Abstract : Introduction: Lyme borreliosis is the most common reportable vectorborne infectious disease transmitted by ticks. The diagnosis and treatment of Lyme disease are areas of controversy in France and North America, and research is ongoing in this field. The purpose of this study was to collate information from patients, who believed that they were afflicted with this disease, but where the medical profession had refuted their diagnosis. Methodology: This is a qualitative study using semi-structured individual interviews with thirteen patients who had not been diagnosed with Lyme disease by a doctor, recruited via an association of patients on the Internet. They were carried out by two researchers, and the verbatim was fully transcribed and coded double-blind. A thematic analysis in a phenomenological approach was conducted until consensus to obtain a triangulation of data. Results: Our study showed that patients self-diagnosed by comparing their symptoms with those presented by like individuals, on the internet. Lyme disease is an insidious and incurable condition, from an exogenous source, necessitating complex treatment. Patients often rejected their doctor's diagnosis that their symptoms were of a psychological nature. They also decided to take charge of their own health and disregard medical opinion. Patients perceive their long course of treatment as a battle to gain recognition of their symptoms and illness by the medical profession and society. Conclusion: Improving the management of these patients by recognizing their symptoms, support and awareness of the critical information received seems fundamental.
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Master Thesis
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Submitted on : Wednesday, July 16, 2014 - 4:11:03 PM
Last modification on : Tuesday, May 11, 2021 - 11:36:17 AM
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  • HAL Id : dumas-01024761, version 1


Amélie Revil Signorat, Fanny Gonnet. Vécu et représentations de la maladie des patients pensant être atteints de la maladie de Lyme. Médecine humaine et pathologie. 2014. ⟨dumas-01024761⟩



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