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Master Thesis

Étude de la satisfaction des familles concernant la préparation à la pose de gastrostomie par voie endoscopique en pédiatrie

Abstract : Introduction: during chronic diseases, especially during the childhood, a gastrostomy may be necessary to ensure a sufficient calorie intake or limit risks of respiratory infections. The quality of preparation before getting a gastrostomy may influence the perception of children and their families, and modify long term quality of life. We studied caregivers’ satisfaction about the care and formation they received around the gastrostomy, and we tried to find how to improve our preparations. Methods: we realized a multicentric, retrospective and observational study, in university hospital care centres of Robert Debré, Tours, Rennes et Bordeaux. We sent a satisfaction survey to families of children who had an endoscopic gastrostomy between January 2016 and June 2018. Results: 92 patients were included. Caregivers were very satisfied: concerning the global care and formation around the placement of gastrostomy, satisfaction was noted 8/10. Concerning child’s quality of life evolution, caregivers noted a good evolution (8/10). Giving a written document before getting the gastrostomy improve significatively caregivers’ satisfaction. Several caregivers said the follow-up after the gastrostomy is inadequate. Conclusion: caregivers are satisfied or very satisfied of care and formation they received around the placement of gastrostomy. To improve their experience, caregivers should receive a written documentation, and gastrostomy material should be demonstrated before the placement. The follow-up must be organized with all the professionals involved in the child’s care.
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Submitted on : Thursday, December 19, 2019 - 1:50:49 PM
Last modification on : Saturday, January 18, 2020 - 1:30:23 AM
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Victoire Lecointre. Étude de la satisfaction des familles concernant la préparation à la pose de gastrostomie par voie endoscopique en pédiatrie. Sciences du Vivant [q-bio]. 2019. ⟨dumas-02419311⟩



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