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Master Thesis

État des lieux des attentes en éducation thérapeutique des parents d’enfant sourd diagnostiqué avant 1 an

Abstract : Genetic hearing loss occurs in 1 child out of 1000 and causes various effects on the child’s development and surroundings. Therapeutic patient education (TPE) helps patients and/or their family in gaining and strengthening their adaptation and self-management skills and improves their health and quality of life. This study objectives the needs and expectations on TPE from parents of deaf children diagnosed before one year of age and to research the influencing factor on those needs and the interest towards various proposed workshops. 33 parents whose children were between 0 and 3 years of age were involved in the study. A questionnaire has been shared with parents and with social, medical and paramedical professionals. The study showed a need correlated at 67% with the time elapsed since the diagnosis: as time passes, parents need less TPE. Parents wish for workshops to be done in support groups and/or in role plays and individual sessions, facilitated by various professionals, as well as by experienced parents of deaf children / deaf people. In addition, parents are specially keen on the sibling(s) attendance during the workshops. They are equally interested in gaining adaptation skills as for self-management skills. The proposed workshops are judged “interesting” up to “very interesting”. No significant correlation could be unearthed between time and the interest of the workshops. The results show a need in TPE. It seems pertinent for speech language therapist to propose a TPE approach to improve the patient care and to include the family of the deaf child.
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Master Thesis
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Contributor : Bibliothèque Universitaire de Médecine Nice <>
Submitted on : Tuesday, September 22, 2020 - 5:00:10 PM
Last modification on : Sunday, January 24, 2021 - 3:09:54 AM


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  • HAL Id : dumas-02945942, version 1


Anaïs Milhaud. État des lieux des attentes en éducation thérapeutique des parents d’enfant sourd diagnostiqué avant 1 an. Médecine humaine et pathologie. 2020. ⟨dumas-02945942⟩



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