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Master Thesis

Évaluation de la qualité de supports écrits d’information à destination des patientes, sur l’hormonothérapie dans le cancer du sein

Abstract : Context: endocrine therapy plays a major role in the prognosis of hormone-dependent breast cancer. However, it causes a major deterioration in the patients’ quality of life, due to the significant and prolonged side effects and can have a negative effect on adhering to the treatment. In addition to information shared verbally, the use of communication tools such as written documents by healthcare professionals is key to therapeutic compliance. The main objective of this study is to assess the quality and content of written documentation provided to patients regarding endocrine therapy in breast cancer, in France. Methods: the strategy for identifying written documentation was based on the search engine Google and on an email request to 63 health establishments in France practicing senology. An evaluation grid comprising 64 assessment criteria was designed with the help of literature and expert opinion. It assessed the visual, linguistic, structural and informative aspects of written documentation and incorporated criteria from the HAS Methodology Guide on how to create a patient information sheet. Results: 40 written documents for patients were included consisting of 18 patient information leaflets, 9 booklets, 11 information web pages for the general public and 2 institutional Web pages. On the one hand, the written documentation was visually attractive (65%), employed a reassuring tone (77.5%) and explained the side effects of hormone therapy (87.5%). On the other hand, they insisted less on the benefits of the treatment (55%) and on the means to manage the possible side effects (32.5%). Many written documents did not cite their authors (55%) or their scientific sources (92%), nor did they explain technical terms (77.5%), nor did they include a glossary (72.5%) or illustrations (52.5%). The average Kandel legibility score was insufficient. Conclusion: the timing of endocrine therapy is key during the post-cancer stage as the patient often considers herself to be cured of her breast cancer and lacks support. Written documentation has the advantage of providing answers to common questions about the tolerability of treatments, the benefit/risk ratio and dealing with potentially disabling side effects. If the documentation provided was more legible, was based on a specific development methodology and was produced with input from patients, then the value of all the gathered information would increase, encouraging better therapeutic compliance. It is essential to underline that the written documentation requires to be well distributed, diverse and supportive for patients in order to fight against inequalities in the use of and access to information, particularly in the face of digital technologies.
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Master Thesis
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Contributor : Bibliothèque Universitaire de Médecine Nice Connect in order to contact the contributor
Submitted on : Monday, April 19, 2021 - 2:27:52 PM
Last modification on : Wednesday, July 21, 2021 - 3:20:48 AM
Long-term archiving on: : Tuesday, July 20, 2021 - 6:50:10 PM


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  • HAL Id : dumas-03202000, version 1


Léa Pillon. Évaluation de la qualité de supports écrits d’information à destination des patientes, sur l’hormonothérapie dans le cancer du sein. Médecine humaine et pathologie. 2021. ⟨dumas-03202000⟩



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