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Master Thesis

Étude qualitative auprès des proches de patients avec schizophrénie : vécu, attentes et impact de l’annonce diagnostique

Abstract : INTRODUCTION: Relatives of patients with mental disorders such as schizophrenia are recognized as expert partners in care. It is therefore necessary to enhance the skills and knowledge around the disorder presented by the person whom these relatives support. The communication of the diagnosis by the psychiatrist is an essential time for relatives as it allows them to meet their information and support needs. However, practitioners are sometimes reluctant to communicate the diagnosis, because they can fear the reactions and suffering it can cause to the relatives. The objective of this study is to explore the experiences, impacts and expectations of announcing the diagnosis of schizophrenia to relatives of patients with such diagnosis. METHOD: A single-center qualitative study was carried out at the Center Hospitalier Alpes-Isère. The data were collected during semi-structured individual or couple interviews and transcribed in full. An inductive analysis was performed by two investigators using the principle of data triangulation. RESULTS: Thirteen parents of patients with schizophrenia who had recently been notified of their child's diagnosis of schizophrenia were included between September 2020 and February 2021. Analysis showed that, for the family, diagnosis was a longitudinal process in which the medical announcement put an end to a form of uncertainty regarding this diagnosis. Diagnosis communication was reported as a traumatic experience by all the participants and qualified, for some, by a associated feeling of relief in connection with the possibility of care access. It also emerged that this traumatic experience was caught up in multiple issues and could be exacerbated by the feeling of exclusion of relatives in care. Benefits of the diagnosis communication have been found for relatives in improving relationships with the patient. However, negative personal impacts of the diagnosis communication have been described such as stigma, health consequences and isolation. Perspectives have emerged regarding information and support to be offered to relatives regarding the diagnosis communication. CONCLUSION: The diagnosis communication is a critical milestone for relatives-caregivers of patients with schizophrenia. Understanding the experiences of families could promote their inclusion and allow the practitioner to better understand such announcement. Reflections on specific supports and their implementation following the diagnosis communication should be carried out to improve the experience of families.
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Master Thesis
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Contributor : Jean-Hugues Morneau Connect in order to contact the contributor
Submitted on : Monday, May 3, 2021 - 5:30:20 PM
Last modification on : Wednesday, May 5, 2021 - 3:23:33 AM
Long-term archiving on: : Wednesday, August 4, 2021 - 7:49:32 PM


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  • HAL Id : dumas-03216107, version 1
  • PPN : 255132298


Véra Forcheron, Elodie Sacareau. Étude qualitative auprès des proches de patients avec schizophrénie : vécu, attentes et impact de l’annonce diagnostique. Médecine humaine et pathologie. 2021. ⟨dumas-03216107⟩



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