HAL will be down for maintenance from Friday, June 10 at 4pm through Monday, June 13 at 9am. More information
Skip to Main content Skip to Navigation
Master Thesis

Quel est le vécu de la lecture détaillée de la fiche de directives anticipées de la HAS par la population générale ?

Abstract : Introduction - In 2016, the Claeys-Leonetti law made anticipated instructions opposable and the HAS proposed a drafting model. Despite this, they sparsely redacted.
Method - In a double qualitative study, patients and doctors were asked about their experience of reading this model to understand why.
Results - The sheet studied is perceived as a good support for discussion. However, participants say that the overly complex syntax and the lack of definition are inconvenient. They think that the model cannot be used by a patient alone because the options offered, too technical, do not allow him to make an informed choice. We also note that distrust is expressed by doctors and patients. It reflects a power issue between doctors, patients and the legal power, and is especially revealed when the subject of suffering is raised. Indeed, pain appears to be the first means by which we approach death nowadays. Nevertheless, the participants explained that conversing about death does not only imply the concept of suffering but concerns the patient as a whole. Thus,the fact sheet studied has the merit of offering a necessary dialogue around the end of life. The doctor is designed by patients as the main interlocutor to initiate this discussion between patient, relatives and doctor. The dialogue around the anticipated instructions makes it possible to begin to conceive the idea of death and to approach it more peacefully.
Conclusion - The studied sheet is a way of initiating a necessary discussion regarding the end of life. This dialogue seems to correspond to a draft ritual to address the issue of death.
Document type :
Master Thesis
Complete list of metadata

Contributor : Université Paris Descartes - Scd Connect in order to contact the contributor
Submitted on : Tuesday, January 4, 2022 - 10:57:38 AM
Last modification on : Thursday, April 7, 2022 - 2:28:02 PM
Long-term archiving on: : Tuesday, April 5, 2022 - 6:47:50 PM


Files produced by the author(s)


Distributed under a Creative Commons Attribution - NonCommercial - NoDerivatives 4.0 International License


  • HAL Id : dumas-03455572, version 1



Charlotte Le Mesre de Pas. Quel est le vécu de la lecture détaillée de la fiche de directives anticipées de la HAS par la population générale ?. Médecine humaine et pathologie. 2020. ⟨dumas-03455572⟩



Record views


Files downloads