Skip to Main content Skip to Navigation
Master Thesis

Comment amorcer une démarche d'éducation thérapeutique en oncologie pédiatrie : de l'étude des besoins à la création d'un outil d'intervention thérapeutique ?

Abstract : Therapeutic patient education (TPE) aims to help patients to acquire self-care skills and psycho-social adjustment in order to manage their disease more effectively. Since 2009, it is officially integrated into the patient's care pathway. Many programs are developed in the field of oncology. However, few programs exist in pediatric oncology. Different criteria can explain it: the scarcity and variety of cancerous conditions of the child, the great age variation, and the criteria of chronicity which may seem less marked. In a local context encouraging the development of a TPE program for teenagers with acute lymphoblastic leukemia, how is it possible to begin the process? A cross-analysis of the needs of teenagers, parents and caregivers has been conducted. Indeed, it is an essential prerequisite to TPE. This led to the development of a skills repository and educational objectives to structure the approach. In the aim of conducting therapeutic education workshops, it is necessary to think carefully about the tools. The tools must meet numerous quality criteria and must adapt to the target audience, pathology and the type of workshop. In this project, Onco'logique, a "home-made tool", was created. It is a long and multi step reflection, designing and modeling process. A multidisciplinary look on this tool is essential to give it legitimacy. In the short term, an actual implementation and an evaluation by teenagers and their educators will help develop and improve it.
Document type :
Master Thesis
Complete list of metadatas

Cited literature [46 references]  Display  Hide  Download

https://dumas.ccsd.cnrs.fr/dumas-01229369
Contributor : Bu Carreire Université de Bordeaux <>
Submitted on : Monday, November 16, 2015 - 3:12:39 PM
Last modification on : Wednesday, August 23, 2017 - 4:29:16 PM
Long-term archiving on: : Friday, April 28, 2017 - 8:37:57 PM

Identifiers

  • HAL Id : dumas-01229369, version 1

Collections

Citation

Marion Grouvel. Comment amorcer une démarche d'éducation thérapeutique en oncologie pédiatrie : de l'étude des besoins à la création d'un outil d'intervention thérapeutique ?. Sciences pharmaceutiques. 2015. ⟨dumas-01229369⟩

Share

Metrics

Record views

297

Files downloads

80