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Master Thesis

Évaluation des besoins des patients en information sur les traitements systémiques du mélanome et élaboration de fiches d'information destinées aux patients et aux professionnels de santé

Abstract : Context: Over the past 10 years, the emergence of new therapies in the treatment of melanoma has made it possible to improve patient’s survival. It has also contributed to the emergence of new challenges concerning the management of adverse events, until then rather unusual. Objectives: To assess patient’s information needs with the aim of building an appropriate educational tool on the management of new melanoma treatments. Methods: A cross-sectional descriptive study on quality and access to information for the patients. A questionnaire was given to patients treated with immunotherapies or targeted therapies in the Grenoble UH. 83 questionnaires were distributed in the day hospital of dermatology at the Grenoble UH from 01/07/20 to 01/08/20. The results were analysed by Excel® and Stata® software. Results: 76 questionnaires were analysed with a response rate of 92%. 88% of patients were favourable towards the creation of the informative sheets. Their main source of information about the adverse events of treatments came from UH dermatologists (86%). 60% of patients have claimed to know about serious adverse events but this result has to be qualified because 50% of patients on immunotherapy and 17% on targeted therapy had no correct answer to the quiz about adverse reactions. There was also a low number of out-of-hospital health professionals, especially general practitioners (7%) and pharmacists (9%), integrated in the management of adverse events path. Conclusion: We observed a patient’s information need on the adverse events of recent melanoma treatments. We have created informative sheets for patients and extra-hospital professionals to guide the patient as best as possible in his health care pathway.
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https://dumas.ccsd.cnrs.fr/dumas-03371292
Contributor : Jean-Hugues Morneau Connect in order to contact the contributor
Submitted on : Friday, October 15, 2021 - 10:25:14 AM
Last modification on : Wednesday, November 3, 2021 - 4:49:51 AM

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  • HAL Id : dumas-03371292, version 1

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Lisa Delorme, Emilie Capitan. Évaluation des besoins des patients en information sur les traitements systémiques du mélanome et élaboration de fiches d'information destinées aux patients et aux professionnels de santé. Médecine humaine et pathologie. 2020. ⟨dumas-03371292⟩

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