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Master Thesis

Perceptions, représentations, et expériences des patients présentant des symptômes persistants dans un contexte de suspicion de borréliose de Lyme

Abstract : Introduction - Lyme borreliosis (LB) mainly affects skin, joints, and nervous system. Some subjective symptoms may also be present at all the stages and may persist several months after treatment. Nonspecific symptoms without any objective manifestation of LB are sometimes attributed by patients to a possible tick-bite. The aim of our study was to describe perceptions, representations and experiences of these patients of their disease and care paths. Methods - We performed a qualitative study (interviews) based on grounded theory, respecting the COREQ items. Interviewed patients presented varied profiles to obtain an illustrative sample of patients. Results - Data saturation was reached at the 12th patient included. 293 codes were identified and grouped into 5 non-predefined themes: (1) an experience of painful illness, generating misunderstanding and fear, (2) a long and difficult care path, lived as an obstacle course, (3) a negative impact in all spheres of life of patients, (4) empowerment of patients, (5) a desire for change (listening, recognition of their symptoms, and improvement of the care path being in the foreground). Conclusion - The identification of patients' expectations in our study could lead to a better understanding of the doctor-patient relationship in these complex diagnostic and management situations. They wanted a diagnostic / therapeutic response, whether they had a LB and / or a differential diagnosis. The creation of multidisciplinary reference centers could answer them.
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Master Thesis
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https://dumas.ccsd.cnrs.fr/dumas-03434219
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Submitted on : Thursday, November 18, 2021 - 10:47:34 AM
Last modification on : Wednesday, January 5, 2022 - 3:09:24 AM

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  • HAL Id : dumas-03434219, version 1

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Aude Barquin. Perceptions, représentations, et expériences des patients présentant des symptômes persistants dans un contexte de suspicion de borréliose de Lyme. Médecine humaine et pathologie. 2019. ⟨dumas-03434219⟩

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