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Master Thesis

Enquête de satisfaction des proches de patients à propos des structures hospitalières de soins palliatifs du Sud Gironde en 2018

Abstract : Introduction: in France, the palliative care offer is expanding. The professional training and the creation of dedicated structures seek to meet needs of patients at the end of life and their relatives. Objectives: the main objective is to assess the satisfaction of relatives with support for palliative care structures in South Gironde (33). The secondary objectives are to identify the elements of satisfaction, the difficulties encountered and identify areas for improvement. Methods: our study is descriptive and retrospective. A self-administered questionnaire has been sent to the 126 relatives of patients died in 2018 and followed for palliative care in South Gironde. Results: The participation rate of relatives is 77%. The results reveal significant satisfaction among relatives: 100% for the Home-based Palliative Care Team, 88% for Home Care Services and 89% for Identified Palliative Care Beds. The elements of satisfaction are respect for the patient's wishes, the skills, the human qualities and the availability of caregivers. Relatives report a significant lack of caregivers in the structures. They need information and preparation for the progression of the disease. They wish training of professionals in palliative care and additional time for psychosocial support. They criticize the difficult communication between liberal professionals and the hospital. Conclusion: the increase in nursing staff trained and aware of palliative care is the first avenue for improvement in order to offer quality care to patients. The other tracks aim at a better coordination of care with the use of tools for early detection of palliative situations, communication tools between the liberal professionals and the Hospital and the anticipation of palliative emergencies.
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Master Thesis
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Submitted on : Monday, October 19, 2020 - 6:39:30 PM
Last modification on : Saturday, November 7, 2020 - 3:12:30 AM
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Amandine Ducouret. Enquête de satisfaction des proches de patients à propos des structures hospitalières de soins palliatifs du Sud Gironde en 2018. Médecine humaine et pathologie. 2020. ⟨dumas-02971876⟩



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